We’re in Charlotte waiting for my son Nicholas’ Remicade infusion right now. We both got up early this morning and Nicholas asked, “Are we going to Charlotte today, Poppa?” I said, “Yes, because I want you to be healthy. That’s the second most important thing I want for you. What do you think is the…
I have served on the organizing committee for Zipping for Autism for three years. The annual event raises money—now about $230,000 in seven years—for autism programs in North Carolina. It takes place in Asheville, N.C., on the first Sunday in June. My son, Nicholas, has been one of the top fundraisers each of the past two…
The Day of Mourning, an event remembering and honoring disabled people murdered by family members or caregivers, is held on March 1. Local vigils take place across the United States, as well as in Australia and Canada. In Asheville, North Carolina, vigils have been held at the University of North Carolina Asheville (UNCA) for the past two…
We define autism, clinically and socially. It’s a construct, clustering people with certain human characteristics together. Here’s what autism is. You are autistic. This is what you are. On the positive side, at least sometimes, this clustering fosters autistic identity and community. But too often it also separates autistics out from non-autistics and diminishes respect…
One One of the best experiences of my life was four decades ago at summer camp, Camp Killooleet, in Hancock, Vermont. I went for eight weeks each summer for five years. It was a magical place and time and the favorite part of my childhood. I cherish that camp and those people and those years,…
My son Nicholas, autism specialist and psychologist Dr. Steve Love, and I were featured in this little news piece on WLOS talking about Julia, the new autistic character on Sesame Street. Click on the photo or the link below and have a look! http://bit.ly/autisticjulia You can read some of my top posts on autism here.
This year my autistic son Nicholas started calling strangers by their names. But are they listening to him?
I had the chance to participate in Dr. Tiece Ruffin’s Education 379 course—focused on Special Education—at the University of North Carolina Asheville in December. Dr. Ruffin invited me to come to the last class of the semester. Some of the best and most impactful people I’ve known in my life have been schoolteachers. There is…
I had a running commentary with a younger friend this past year about how very old I am. But for much longer it has been a running commentary with my son, Nicholas. Lifting up a box of books, back going out on our weekly hike, or just moving slowly on a weekday morning, I can…
I’ve been thinking a lot about joy lately, and especially about how the same experience or circumstance or day or week or year of your life, and perhaps the entirety of your life, can seem joyful or joyless depending on vision and context. All the things we all talk about, maybe too often, come into play:…
