A Letter about IDD Advocacy in North Carolina

What we lack most centrally in intellectual and developmental disability work and advocacy in North Carolina is the fierce urgency of now, to use and insist upon the meaning of the famous and essential phrase by Dr. King.

October 2022: Ray Hemachandra and Nicholas Hemachandra at the parklet in Asheville, North Carolina, at the Center for Craft, created in conjunction with the Eastern Band of Cherokee Indians.

You’re My Son

My son Nicholas is autistic, and he has echolalia. But what he says in repeated speech can carry as much meaning—and sometimes even more feeling—as the “right” words.

Community Inclusion and IDD: Prioritizing Choice for Disabled People

Should policy-directed “best outcomes” from government officials and advocacy groups reduce, rather than enhance, choice for people with intellectual and developmental disabilities (IDD)—and sometimes trap them in unsafe, hostile environments?

Nicholas Hemachandra on a mountaintop wearing a shirt that says, "If you can be anything, be inclusive."

Autistic Isolation, Connection, and Joy: Never Miss Dessert

Autistic adults, like adults with intellectual and developmental disabilities more generally, are not often seen as agents of love, joy, connection, relationship, and meaning for others. That’s because they’re not often seen at all.

The Value of Disabled Lives and Organs

Why might an autistic, intellectually disabled Black boy with Down syndrome be treated as much more valuable in death than in life?

Because his parents made him an organ donor.

Autism Acceptance—and Celebration

Autism is still largely an unknown, even among generally well-educated people. Autism awareness and education still matter a lot, and they are prerequisites for acceptance. Autism awareness and autism acceptance are both essential.

Are Autistic and Intellectually Disabled People Worthwhile Community Members—or Aren’t They?

I have been reading the proposed changes to North Carolina’s Innovations waiver services and supports, which are designed for individuals … More

Nicholas Hemachandra looking out at Raven Cliff Falls in South Carolina, May 2020

No “Because” but Love—Intellectual Disability, Identity, Representation, and Value

Autism and disability pride movements assert unique cultures and identities. Can intellectually disabled people be more openly and equitably represented … More